There are many things that we still do not know about Takotsubo Syndrome (TTS), but it is reassuring to know that there are many researchers and scientists from around the world who are working to gain a better understanding of TTS so that we may develop better treatments in the future. Some researchers may find it takes a while to find enough people with TTS to participate in their study. This is because TTS is relatively rare when compared to medical problems such as heart disease or breast cancer. Many people with TTS want to be involved in research studies to promote a better understanding of the condition. We have listed research studies that are still recruiting participants here on this page. If you meet the criteria for participation in the study and you are interested in participating, please contact the researcher/s using the contact details provided for further information. All research studies are voluntary and there is no obligation for you to participate if you do not wish to do so. If you are suitable for the study and wish to proceed, the researcher should provide you with a Participant Information Sheet and an Informed Consent Form that has details of the Institutional Review Board/Ethics Committee that approved the study.
If you are a researcher and wish to have your study listed here, please complete the Request for Research Study Listing form or contact us for further information.
People with Takotsubo can participate in this study. The first question in the survey relates to diagnosis. Takotsubo has not been included as a specific category but in the category for 'other' in the first question, you can write Takotsubo.
The goal of the study is to further the understand cardiomyopathy, in particular how genetic and environmental factors interact to cause these conditions and to influence their severity and progression. The findings of the study could help develop tailored treatments for patients with cardiomyopathy in the future. We’re actively looking for people with Takotsubo syndrome to better understand if there are any genetic factors influencing the condition.
Principal Investigator: Professor James Ware, Imperial College London, Royal Brompton and Hammersmith Campus’, London, UK.
Further information about taking part in this study can be found at: http://www.thehearthive.org
This is a pilot study designed to explore the brain-heart connection in patients with Takotsubo cardiomyopathy (syndrome). Subjects will be required to participate in single photon emission computed tomography (SPECT) cardiac scans and magnetic resonance imaging (MRI) of the brain, among other procedures, during rest, exercise, and mental stress. Researchers will compare women with Takotsubo to control subjects (healthy participants who do not have Takotsubo).
For more information about this study, CLICK HERE.
Principal Investigator: C. Noel Bairey Merz, Professor of Medicine and Director of the Women’s Heart Center, Cedars-Sinai Heart Institute, CA, USA.
Contact: Shivani Dhawan Phone: +310-423-9666 Email: TakotsuboResearch@cshs.org
The Smidt Heart Institute Takotsubo Registry is conducting an observational study of people with Takotsubo syndrome. Participants in this study will be required to submit medical records (including echocardiograms and angiograms) electronically or mailed on a CD. Registry participants will also be asked to provide an optional blood sample, which will be collected through an easy home-sampling kit. The kit will be sent to any participant’s residence who agrees to participate in the repository. Registry participants will also be asked to complete a series of electronic questionnaires that enable participants to describe their own Takotsubo experiences. The data will be entered into a large database, together with demographic information and responses to electronic study questionnaires.
Inclusion Criteria:
Diagnosis of Takotsubo syndrome
Agree to submit medical records
Exclusion Criteria:
Less than 18 years of age
For more information about this study: CLICK HERE.
The Takotsubo Registry is an international, observational web-based registry that collects data on patients with Takotsubo Syndrome with the aim of promoting a better understanding of this condition through dissemination of findings via presentations at annual congresses, conferences and publications in scientific journals. All cardiovascular centres are invited to participate by becoming a member of this large-scale international Registry.
Contact: email intertakregistry@usz.ch
The purpose of the study is to evaluate clinical features and long term outcomes (including evaluation of therapy) in a large European cohort.
Inclusion criteria: Patients with a clinical diagnosis of Takotsubo Syndrome
Chief Investigator: Dr. Francesco Santoro, Md, PhD, Department of Cardiothoracic Surgery, Cardiology Unit, Policlinico Riuniti, University Hospital, Foggia, Italy. Email contact: dr.francesco.santoro.it@gmail.com
National coordinator for each of the following European countries are as follows:
1) Francesco Santoro, Md, PhD for Italy (University of Foggia, Foggia email: dr.francesco.santoro.it@gmail.com )
2) Ivan Nunez, Md, Phd for Spain (Hospital Clínico San Carlos, Madrid, Spain email: ibnsky@yahoo.es )
3) Ingo Eitel, Md for Germany (University Heart Center Lübeck, Lübeck, email: Ingo.Eitel@uksh.de )
Stay up-to-date
Development of this website was supported by a grant from the Rosemary Bryant AO Research Centre, University of South Australia
Copyright © 2019 Takotsubo